In my own life, there were times when I felt a slave to my body. I felt as though my condition dictated to me when I could and couldn’t do the things I wanted. This caused me to feel as though I had no control over my life. As with all trials, these feelings eventually passed.
The thing I learned during that difficult time was I still have to live my life and allow myself to have fun. Though you may have weeks or months of fairly severe pain crises, you sometimes simply need to get out of the house and enjoy yourself in spite of the pain. It may cause the crisis to be worse tomorrow, or it may help improve it. However, for that moment, maybe what you emotionally need is some mall time with a friend or what have you. Only through trial and error, and by practicing all the things I’ve discussed throughout this blog, will you find that balance in your life.
Sometimes just going outside and sitting in the sun can be very rejuvenating. The sun provides much needed vitamin D. If you spend too much time inside, your body starts lacking that nutrient which, by itself, can cause depression. Finding a cute somebody to go to the park and have a picnic with can be a good way of being social, having some quiet fun, while getting some sun—and perhaps a little sugar—all at the same time.
Once again, I’m not giving you the okay to be reckless with your life. There’s a difference between toughing out the pain while going out with friends for a few hours to keep from going crazy with cabin fever, and from deciding that doing what you want is more important than your health. Getting out and living your life will sometimes be just what the doctor ordered. Other times it’s bed rest. Know which prescription you need and when to take the proper dose.
This blog is intended to help people of all ages cope with many of the challenges that come with Sickle Cell Disease. When first launched, my target audience was teens and parents. Over the years, however, the scope of my content has expanded to help people of all ages who may struggle with similar complications as I. Whether you’re reading this for yourself or to help a loved one cope with Sickle Cell, I believe there is something here for everybody affected by this disease and other illnesses.
- Home
- About Me
- Dedication
- Introduction
- Contents of Topic 1
- Contents of Topics 2-5
- Contents of Topic 6
- Contents of Topics 7-9
- Contents of Topics 10-13
- Contents of Topics 14-16
- Contents of Topics 17-19
- Coping with Sickle Cell
- Health and Nutrition
- Leg Ulcers - My Experiences
- Leg Ulcers - Treatments
- More on Meditation
- My Artwork
- My Hip Problems
- My Music
- My Poetry
- My Sushi
- Red Light Therapy
- Thoughts / Experiences
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