Coping with Sickle Cell

Coping with Sickle Cell Disease can be a difficult challenge. Everyone living with a chronic illness must find their own way of dealing with the effects a life threatening illness has on the mind, body, and spirit. The posts below address some of the way I have and do cope with this illness.
(Clicking on the title will take you to the desired post.)

•   Sleep and Sickle Cell Disease
•   Managing a Sickle Cell Pain Crisis
•   Methadone & Morphine in SCD Pain Management
•   In Denial of Your Sickle Cell?
•   Symptoms of Low Hemoglobin in Sickle Cell 
•   Managing Sickle Cell Disease
•   No Remission for Sickle Cell
•   Avoiding Hospitalization from Sickle Cell Pain Crisis
•   Cold Weather and Sickle Cell
•   Don't Panic During a Sickle Cell Pain Crisis
•   Angry with God About Sickle Cell?
•   My Angry Adolescence Living with Sickle Cell 
•   Dogs Bring Comfort Living with Sickle Cell
•   Sleepless in Sickle Cell
•   Bed-wetting and Sickle Cell
•   Coping with a Sickle Cell Pain Crisis
•   Sickle Cell Pain Crises & Showers
•   Trials and Blessings of Sickle Cell
•   The Three F's of Coping with Sickle Cell - Faith
•   The Three F's of Coping with Sickle Cell - Family
•   The Three F's of Coping with Sickle Cell - Friends
•   Coping with Sickle Cell: Benefits of Writing



 

4 comments:

  1. Y WHEN WE DRINK PLENTY WATER WE STILL HAVE CRISIS, Y?

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    Replies
    1. I wish I had an answer for that. There are many things that can trigger a pain crisis: emotional stress; too much physical activity; cold or hot weather; and not enough sleep are only some of them.

      When I'm eating healthy, getting enough sleep, drinking plenty of water, and doing everything possible to stay health, I still have pain crisis. It's the nature of the beast. But imagine how worse the crisis might be if we didn't drink enough water. As bad as a crisis is, it could be worse if we weren't doing everything we should.

      All we can do is take care of ourselves as best we can, and have faith in God.

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  2. Hi Jon,

    I recently went through your blog and I loved the indestructible spirit in facing SCD as it where. Also, I am glad that you're able to wear those shoes again!!!

    However, I work for the above foundation and we're working on an expose on Sickle Cell survivors' story to encourage others too. I would like you to share your story using the theme My Sickle Cell Story, that's if you don't mind.

    Just in case you're willing to, feel free to contact us via info@fssf.org.ng, on twitter @FSSF_Initiative or facebook.com/fssnigeria. We hope to hear from you soon.

    Thank you.
    Regards

    ReplyDelete
    Replies
    1. I apologize for taking so long to respond to your comment. I recently moved which has thrown me off balance a bit in my daily routine. "Indescribable spirit." I don't believe anybody has ever used those words to describe me. I'm more than flattered and honored by you saying so. I give credit to my loving family and my faith in God for that fighting spirit. Thank you for taking the time to comment. I'm always touched by the words of those who take the time to reach out to me. My heart is warmed by your words.

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