Red Light Day Six

Today is Tuesday November  25, 2014. On Wednesday of last week I received my red light in the mail and began using it. For the fifth day since receiving the product, I have awoken with very little pain from my foot ulcer. Typically when I awake and put my feet down, the first 20 minutes are very painful. The blood rushing to my feet causes my ulcer to burn like fire. It's awful. I know this red light is making the difference.

For the past two nights before going to bed, my foot began hurting. Typically I would have to redress the wound so I could apply lidocaine and reduce the pain. Instead, I used my light on my foot and around my wound for fifteen to twenty minutes. After doing so both nights, the pain was either gone entirely or drastically reduced. I can't wait to see if/how much more quickly my wounds heal as a result of using this light.

I have something else to report. And I  don't know if this is a result of using the light, or a result of feeling more optimistic about my situation--but for the past three days or so I have felt as though I've had more energy and been more alert. Like I said, this could simply be because I'm no longer depressed about my wounds and feel hopeful that I found something that will help them; it could be a result of being in less pain from my wounds; or it could be that the red light is improving my health in ways that not measurable. Perhaps it is all of the above. I only know I feel better, physically and emotionally, than I have in recent memory.

I will continue to update my readers on how my life is being positively impacted by use of this device.

Red Light Therapy & Sickle Cell Foot Ulcers

I know some people may be skeptical about this, but I feel like sharing anyway. Through happenstance, I became aware of, and began to research, “photonic therapy” or “red light therapy.” Clinical medical studies have proven the benefits of this light treatment to include: reduction of pain and inflammation; increases cellular regeneration and healing; improve circulation; relax muscles; and much more. I read several studies where diabetic ulcers treated with photonic therapy healed 70-90% quicker than those treated with placeboes or conventional means. Needless to say, my interest was more than piqued. Sickle Cell leg/foot ulcers are not dissimilar from Diabetic ulcers.

I have been so depressed about my foot ulcers. For the past four years, it’s been a constant battle. I no sooner get over one wound and another one breaks out. After doing my research, I became very hopeful that maybe the Lord lead me to something that will not only help my wounds heal, but help prevent them from forming in the first place. So, after doing a lot of research, I decided to give this a go, and bought the product sold by Photonic Health. There are other companies out there, but I liked this one the best.

Basically, it’s a technology utilized by NASA 40 years ago. The device is about the size of a small flashlight and shines a red light that has a wavelength that helps promote cellular growth. I received my product on Wednesday and began using it right away.

When I awake each morning and put my feet on the floor, the blood begins rushing to my feet, and my foot ulcer burns like its on fire for 15-20 minutes. Thursday morning when I awoke, instead of my pain being 8-out-of-10, it was a 2. Thursday was also a day spent at Loma Linda with doctor appointments. Typically, unless my foot is elevated, it begins burning badly. When I go to the doctors, I can’t wait to get home, elevate my feet and put some lidocaine on my wounds because they hurt something awful. This Thursday was different. I had very little pain all day, and by the time I got home, the pain was still very slight; not at all at the level I typically experience.

Though I have only been using this light for five days, I am very hopeful and encouraged by the results I’ve already seen. Over the past five days, if my foot began burning at all, I have used the red light on it for about five minutes and the pain was gone. This has been true for the arthritis pain I have in my hand, and other pains. My parents have also used the red light for various issues and likewise have seen and felt positive results.

I am very anxious to see how, if at all, this device improves the healing of these painful wounds on my feet. Even if this device does little else, even if my healing time is not improved, the device has already been worth the expense. Anything that helps remove or reduce the pain from my wounds is worth the cost.

To learn more about the product I bought and how it works, click here. There are similar products out there which are used for cosmetic purposes. This device, however, is more powerful. If you go to the above website, you will see they promote their device for use on animals. It is however, designed for us on humans and animals. I think it’s promoted for veterinary use as a way of getting around selling it as a medical device and the red tape of the FDA. After all, the pharmaceutical companies don’t want devices sold that can help patients heal faster.

I know this is a long post. Please forgive me. I just wanted to share this others. I know there are other people out there who can benefit from such a device. I will keep you appraised of how, if at all, this product continues to bless my life. So far, I feel it’s worth the investment. And it may be something other people may be interested in as well.

 

No Remission for Sickle Cell

I had a conversation with a friend of mine not too long ago. Innocently and ignorantly, she suggested that I often have a reprieve from my illness. In her mind, if I wasn't having a lot of pain, my illness wasn't affecting my daily life. What she was unable to comprehend was, there is no reprieve from living Sickle Cell Disease; ever.

She was unable to understand that every choice I make, everything I do is influenced by my illness. Most people drink water because they are thirsty. I do my best to drink as close to a gallon of water each day of my life; not because I'm thirsty, but because it's what is necessary to prevent pain. Failing to do so on a regular basis can have painful and long lasting consequences.

If I fail to get the proper amount of sleep; if I fail to eat proper and balanced meals; if I fail to keep my stress under control; if I walk into a cold room or allow myself to become chilled...the consequences to any one an all of these can be painful and hurl me into the hospital.

I have to think about what the environment might be like everywhere I go and be prepared accordingly. Everything I do, I have to consider how that action may impact my health or cause me pain. Every single day of my life, I have to work at staying alive. There is no reprieve from that. It is a monkey that is always on my back.

It's important for friends and family to try to understand that your loved one's life is impacted, every moment of their life, by Sickle Cell. Just because they are out of the hospital or not in pain at the moment, it doesn't mean they are worry free. It takes constant vigilance for a Sickle Cell patient to stay out of the hospital and ward off a pain crisis. And even with that constant vigilance, the pain comes anyway, as do hospitalizations.

Friends and family of Sickle Cell patients must be understanding and forgiving people. And we as patients, must likewise be forgiving and understanding of others.

It's not my intention that this post come off as a rant. My intention is awareness. Family and friends must be aware of the weight that is always on our shoulders.

Winter's Tale

The change in weather can be a difficult time of year. Passing out of summer and into winter brings: shorter days, colder weather, increased pain and complications, more likelihood of hospitalization, and even depression.

With Sickle Cell Disease, cold weather equals more pain. In my adulthood, most of my hospitalizations have occurred during the winter months. This is because the cold has such a profound negative impact on my body.

Drinking the necessary amount of water can be challenging in the winter months. Because it's cold, I often don't feel like drinking the water I know I need to. It takes discipline and focus to avoid dehydration.

Staying warm means layering my cloths; usually lots of layers. I'm talking, thermal underwear (maybe two sets), long sleeves, sweater, scarf, gloves, coat, hat, and perhaps a blanket for extra good measure.

People who are not sensitive to the cold don't understand what's it's like for those of us who are. Most people, when they get chilled, are simply uncomfortable; it's an annoyance. For Sickle Cell patients, becoming chilled means pain; the sensation of needles jabbing you all over your body. And it may not go away once you are warm; it may last hours, days, weeks and even result in hospitalization. Staying warm is essential to our health.

The shorter days in winter clearly means less daylight. Less sunlight can lead to depression. My mother and I both are like Superman, our strength comes from the sun. When the winter comes, we grow anxious and depression and irritability are much more common. She and I both hate the winter.

So what is my point in talking about this? I really don't have one. I'm joking. My point with all my posts is to improve awareness. It's to help provide insight to those who have loved ones living with Sickle Cell. It's also to help encourage those living with SCD. 

Living with SCD is hard. Most people can't come close to understanding how much work it takes for us to stay alive and out of the hospital. Though it takes more work for us to stay alive, life is worth living. Never forget that.