I can't believe it's been two months since my last post. It's easy to get distracted by life. On August 11, 2016 I had to receive another blood transfusion; two units. January of this year was the last time I needed to be transfused. Before that it was 2011. I have been fortunate in my adulthood to be able to go, on average, 4 years between hospitalizations and blood transfusions. It has me a little concerned that the frequency seems to be speeding up in my "older" years. Which I suppose is natural. I know I have nothing to complain about; many sickle cell patients are hospitalized far more often than this.
I sometimes worry what the future of my health is going to be like. How rapidly will my heart and kidney function drop? Will I need more frequent blood transfusions? Will I continue to have foot ulcer after foot ulcer? I do my best not think about things which are both unknown and out of my control. What will be will be and I will deal with those things if and when they come. Worrying about it isn't going to change anything. The only thing I can do is what I always do: drink plenty f water; eat healthy; get the proper sleep; know my limits; take care of my body; and keep myself mentally and spiritually healthy.
Whether you are healthy or live with a chronic illness, life is full of unknowns and uncertainties. We just have to deal the our challenges as they come, stay positive, and hold on to our faith. I pray each of you find things in life that help you find joy and fulfillment.
Until next time...may peace be with you.
This blog is intended to help people of all ages cope with many of the challenges that come with Sickle Cell Disease. When first launched, my target audience was teens and parents. Over the years, however, the scope of my content has expanded to help people of all ages who may struggle with similar complications as I. Whether you’re reading this for yourself or to help a loved one cope with Sickle Cell, I believe there is something here for everybody affected by this disease and other illnesses.
- Home
- About Me
- Dedication
- Introduction
- Contents of Topic 1
- Contents of Topics 2-5
- Contents of Topic 6
- Contents of Topics 7-9
- Contents of Topics 10-13
- Contents of Topics 14-16
- Contents of Topics 17-19
- Coping with Sickle Cell
- Health and Nutrition
- Leg Ulcers - My Experiences
- Leg Ulcers - Treatments
- More on Meditation
- My Artwork
- My Hip Problems
- My Music
- My Poetry
- My Sushi
- Red Light Therapy
- Thoughts / Experiences